Time keeps on plugging along
Following the operation, I didn't know if it had helped at all. I was in physical therapy for 8 months, which was very hard work. As I write this, it is fully 9 months after surgery. In all honesty, I would have expected to be in a much better condition by this point in time. I still need a wheelchair a lot of the time. I still can't get out of bed some days. And I still have a lot of pain in my head and neck. On the other hand, I've been able to return to school. I'm a full time student, living on campus (at least during the school week). I don't have a lot of energy, but I'm still able to live a full life, with extra limitations. I've developed problems with my heart rhythm, probably related to the autonomic dysfunction, which has come to be a regular part of my life. Since it's a chronic illness, I may have to deal with it for the remainder of my life, but after everything I've been through, it's nothing I can't handle.
Here's the Invisible Illness Awareness Website:
They have a motto, which is my favorite:
"But you look so good!"
People with Chronic Illnesses often also suffer from depression and related mental illnesses. Depression, disability, and chronic illness and form a vicious cycle. You can read more information here: